Bright and early Monday morning, Annelise started her day of testing. She started with the Milk Study, which watched what happened when she drank her bottle and then for 1.5 hours afterwards. The nurse told the techs that they should not feed her quickly, but they did. And they ended up with vomit all over their testing room as a result. This test will tell us if Annelise is micro-aspirating any milk into her lungs. We don't have any results yet from that test. (of course!)
Then, we weren't allowed to feed her until 3pm when she went in for the Barium Swallow/Upper GI test. This watched barium travel through her esophagus/stomach/intestines to see what happens and also to see her anatomy. Well, her anatomy is right where it's supposed to be. (Thank God.....considering she underwent surgery 70 days ago to put it there!) Her stomach is on the small side, but in the right place. And typical of Annelise, she didn't reflux at all during that test! :-) She wasn't happy that after 5 hours of not eating we gave her some barium to eat. But I followed up her test with a very full bottle of milk for her. She smiled at me after I fed her that. What a sweetie!
We're waiting to hear about the Milk Study and then to hear what the surgeon decides is our next move. Dr. Flake, who did her CDH repair, will make the decision about the Nissen/g-tube insertion. There are pros and cons for doing the surgery. We know we're in the right hands, as Dr. Flake is a very skilled surgeon.
This IS typical of a CDH baby, I had just hoped we weren't going to go down this route, and it didn't seem that we would. When the intestines and stomach are manipulated like they were, there are many complications that can occur. A resolution seems imminent and I just want a healthy baby to take home.
I hope whatever decision you make Annelise gets to come home quickly.
ReplyDeleteRenee