So our medical update of the day:
Annelise's lung x-rays are showing that her lungs aren't fully opened to where they need to be for extubation. The team changed her ventilator settings slightly to try to give her lungs the support they need to expand. Her rate is down though....that's the amount of breaths that the ventilator gives her. But she's breathing over the vent on a consistent basis. So that means that she can breath on her own, just not deep enough to stay oxygenated yet. So we're giving her more time to expand her lungs a bit. I would say within the next week to two weeks, our little girl will be breathing without the aid of a ventilator!
In the meantime, they've increased her feedings of breast milk. She's still getting it through her NG (nasogastric) tube right into her stomach. BUT, that means that she's reacting well to the milk and not having issues spitting up or a lot of gas. GERD (reflux) is very very common with CDH babies. She may develop it as they increase the amount, but so far so good. Yay!
Today when we visited with Annelise, she was alert for a little while. Then she fell asleep again. The nurse took her out of her Snuggly to change it, and Annelise got a much needed stretch. She loves to stretch her hands and feet out of the Snuggly, and without it swaddling her in, she could stretch her arms and legs as much as she wanted. Well, I caught her on camera.....
Like a true Jersey Girl, Annelise was fist pumping in her bed! I put this as my screen on my phone, and every time I look at it, I laugh a little! So cute! I can't wait to show this in a slideshow at her wedding! :-)
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